| Welcome |
| About Battens Disease |
| Research |
|
|
Jordan in the media: |
|
|
| Fund-raising events |
| About the Trust |
| How to donate |
| Contact us |
| Photo gallery |
| Related links |
 |
| Registered charity no: 1098918 |
The House welcomes Southwark: The movie which aims to raise money for pioneering research and highlight the plight of 4-year-old Jordan Harris who has the slow progressing fatal brain disease Late Infantile Battens; further notes that Southwark: The Movie will be released in cinemas across Southwark from 13th October; and calls upon members of this House and members of the public to attend screenings of the movie.
Simon Hughes MP states:
“The money raised from this appeal will be given to vital research that will go towards stopping families being put through the heartbreak that Jordan's family are going through”.
“Southwark: The Movie will not only help raise money for this wonderful project and raise the profile of this fatal disease, but will also give Jordan a fighting chance of survival, I hope the people of Southwark will dig deep, enjoy the film and know their generosity will be going to such a worthwhile cause.”
Also, parliamentary questions are put to the Secretary of State for health about current funding for Batten's disease and gene therapy.