Welcome About Battens disease Case histories: Nathan and P.J. Milto Natalie Aurelio Bobbi and Danni Shone Michelle K. Research Jordan in the media Fund-raising events About the Trust How to donate Contact us Photo gallery Related links Registered charity no: 1098918		Bobbi and Danni Shone, Worksop, Yorkshire Mark and Georgina Shone have 2 daughters called Bobbi, now 6, and Danni, aged 5. Both Danni and Bobbi have Late Infantile Battens. As of January 2003, Bobbi can no longer walk or talk and is virtually blind, She does still laugh and smile, so we know she is still in there. Bobbi has now had a feeding tube inserted into her stomach. She has, however, put on 7 kg since the operation. Danni is now unable to walk at all, her favourite past time is getting the videos out of the cabinet and sitting looking at them all. She has lost all but rudimentary speech, however her eyesight is holding up. For more information about Bobbi and Danni click here.