Welcome About Battens disease Case histories: Nathan and P.J. Milto Natalie Aurelio Bobbi and Danni Shone Michelle K. Research Jordan in the media Fund-raising events About the Trust How to donate Contact us Photo gallery Related links Registered charity no: 1098918		Nathan and P.J. Milto, Greenwood, Indianopolis Nathan is a sweet, innocent eight-year-old boy. He is the older brother of Nicholas, who is 7, and P.J. who is 5. He is our son and we love him dearly. He has been diagnosed with a fatal degenerative neurological disease called Late Infantile Batten disease. This disease takes no mercy on its young victims. Nathan is currently completely blind and is regressing in skills that he had once mastered. Every day he struggles to do normal daily activities. The child who once ran and played like other children now requires constant help with routine tasks. Nathan’s future will consist of seizures, loss of motor control, as well as loss of the ability to think and reason coherently. Nathan will end up bedridden and will require a feeding tube for nourishment. The average life expectancy for a child with Late Infantile Batten disease is 12 years of age. It breaks our hearts to see this wonderful boy struggle so much. In appearance he looks very normal and others cannot understand why he struggles. At this point, we are desperately searching for a treatment for his conditions. We are willing to do anything or go anywhere to help our son. On March 12, 2001, complete devastation overcomes the Milto family when test results from their youngest son, P.J., come back positive for Late Infantile Batten disease. The Milto family is attempting to deal with the unbearable diagnosis of their youngest son. Nathan’s Battle now becomes a WAR!!! We MUST win both the battle and the war. Two of our three children have this dreadful fatal disease. For more information about Nathan and P.J. click here.